My Fmaily

My Fmaily
Sean and I are waited for the day to be a Family of 3
Showing posts with label Embryo Donation. Show all posts
Showing posts with label Embryo Donation. Show all posts

Friday, March 6, 2015

The Story Of Our Embryo Adoption




The Story Our Embryo Adoption- We call our embryo baby Penguins 

Dear my Beloved baby Penguins, l never got meet you. I never heard your heart beat, I never saw an ultrasound of you, or even a picture of you as an embryo. Although I had no genetic connection to you, I still feel like your mommy. I have been your mommy since May 9, 2013 when I got the phone call from our embryo adoption agency that we had been picked to be the parents of eight embryos. I wanted to do my very best to give you all the best chance at life that you could. It was a one year and half battle to do my best for you, but in then end sadly we lost all eight of you. Just know, Penguins, that Mommy loves you a lot and wishes she could have met you in person.
                Let me start from the being how we got started on embryo adoption. In April 2012, I met a friend from high school for coffee and she told me that she and her husband were doing embryo adoption. They had a biological son that was born with a genetic disorder and were doing embryo adoption to have another child. She told me how excited she was about it and how she was excited that she could carry their adoption child. I thought to myself that sounded weird but ok. She had told me that they had just signed up with a Christian Embryo Adoption agency and was waiting to get matched. At the time I was about to start to do IUI, and had no idea that we would try twice and be unsuccessful both times.
                After our last failed IUI, we moved on to look at IVF. I was talking to my friend about us doing IVF, and she told me what a great gift it would be if we donated any embryo we had leftover to another family. She had told us a little bit about their donor family and why the family picked them. At that time we were told I had unexplained infertility so we thought IVF would work. But just as we were about to start the medication for IVF, my doctor tested my egg quality and said that we only had a 5% chance of a pregnancy with IVF. After that, I called my friend and told her what the doctor had told us. She talk to us again about embryo adoption. We thought about it and I called a national number for embryo adoption I found online. The guy I talked to gave us the name and number of a Christian Embryo Adoption Agency in Washington State, where we lived.  I called the agency on Dec 3 2012.  After getting off the phone I was so excited and we talked about it. We decided this was our best way to have a child. We could still go through with the pregnancy and we knew from having a home daycare that genetics did not matter because we loved the daycare kids as we would love our own children.
In January 2013 we had our home study done to do embryo adoption. Our home study took some time to get done because my fingerprints for the FBI background  check were just not readable, so we had to do my fingerprints three times. We finally got it figured out.  When our social work came to do our home visit it was kind of funny because with the home daycare we have to have safety lock on all the cupboards and drawers, and we have to have a fire extinguisher and a fire escape plan that is posted. This all stuff that she usually talk to couples about but we already had it all because of the daycare. I think we were one of the first families that had it all done ahead of time.
After our home study, we were set to get matched. We met with Maria at our embryo adoption agency at the end of April. She greeted us with words we thought we would not hear for at least four more month: “Great news! I mailed off your profile book this morning to a family.”  Daddy (Sean) and I look at each other and was like WHAT! That was fast.
We were told by the clinic where we were going to do IVF with that we could not do our embryo transfer there because they did not except embryos from other clinic and they did not have an embryo adoption program at the time. So Little Penguins, we chose to do our transfer at the clinic that your mommy and daddy first used and you were there just waiting for us on ice. That is how you got the name the “penguins”: because you were chilling on ice.
The day I got the phone call that we were picked I will never forget in a million years. I was baking muffins to give to the moms of my daycare kids as a thank you for being so understand and supportive us that year. We had to close the day care often because of  the IUI and IVF appointments, and I know that there were more appointments and days I would have to be closed while doing the embryo adoption stuff.  As I was taking heart shape muffins out of the oven my phone rang. It was Maria saying she had great news: the family had picked us. They had eight embryos for us and had had one son from the embryos. She told us more about the family too. I called Daddy (Sean) to tell him the great news right way. He was excited too.
I will also never forget the day I got the family profile. I had just got home from Western Washington from my doctor appointment. I was so excited that I was in the same building that you were in. But I got home the family profile was waiting for me. Daddy was not at the doctor appointment with me at the clinic because he had to work, so he gotten the mail that day and had the picture of the son laying out for me to see. That picture was the first thing I saw after my four hour drive home. I thought Daddy was playing a trick on me and had laid out a old picture of my oldest nephew Bryce. As I look at the picture closer I realized that Bryce never had a sweatshirt that the boy in the picture was wearing. The boy in the picture was not Bryce but the son of our donor family: your full brother. I looked at the picture of him around age two and noticed that the picture look a lot like one of me at the same age. Thats when I just knew that you, little penguins, were meant to be our babies. We had already decide that we going to take whatever embryo we were given. But after see the family profile there was nothing to think about.
We were ready to schedule our first transfer for the first day available. After all, that July would mark six years of trying to add a child to our family. We got August 7 as our transfer date. I thought that is a great date it is a month after our wedding anniversary.  So August 7, 2013 was our big day to get pregnant. When we showed up at the clinic they told us that they thawed out 4 of you even though we asked for two to thawed.  We stayed at my best friend house the night before and a few days after so that I could rest and two of you could have a  good chance at implanting. I was so excited and thought no matter what, I’m pregnant with twin. I really, really, really, wanted twins. Then August 16 was the day of the blood test. We had to drive down to the Tri-Cities to do the blood test because we did not really know if there was any place in Sunnyside beside the hospital to do it. We also knew that the hospital charged three time as much so we did not want to go there, so we went to the Tri-Cities. We hung around the Tri-Cities because we were going to see friend and had a family reunion to go to later that day. We went to brunch, then we went to the mall and walked around. We thought about seeing a movie but we did not want to miss the phone call telling us we were pregnant.  The friend we were going to see was not off work yet, so we went to a park and were going to walk around when my phone rang. The nurse start off by saying “I’m so sorry but you are not pregnant”.  As soon as she said that I gave daddy (Sean) a thumbs down.  He started crying right way.   After calling family and e-mailing Maria at the embryo adoption agency, I went in the bathroom at the park and ripped of the estrogen patches that I had on to help you grow.
We know right away we need to try again. We were all set but the end of September we found out I need to get my gallbladder out so we had to wait a few months. We set up for a December 12, 2013 transfer. We were so sure, little penguins that this was the transfer that was going to work. We would get our twin penguins, we just knew it.  We had heard from people that their first transfer failed but their second one took and they got twins. We just knew this the time. So we went for the transfer once again. We were hoping they would thaw out two but they thawed out four again. One of the embryos did not make the thaw and two did and they got transferred in to me and the one was left they said it was a compacting and they were questioning it.  Part of me wanted to just ask them to transfer all three of you that were left but I thought to myself, “No; if they all take, a triplet pregnancy would be hard.” That day we drive back to Sunnyside. Daddy had to work the next day and the clinic told us it was ok to drive the four hours home, so we did. Then I got the most surprising phone call from the clinic: our last little penguin that they questioned had grown to a full blastocyst and they wanted to know if we wanted to re-freeze it, and we said yes. We thought “wow, we have one fighter on our hands.” Then December 23, 2013 was the big day for the blood test. We went down to the Tri-cities again. Then I don’t remember what we did after that but we went to a friend’s place to have dinner with them. That is when we got the phone call. I made Daddy (Sean) answer because the last time I answered the phone the test was negative so I thought this time if he answer the phone the test would be positive. But I was wrong; it was negative once again. This time the first person I called was Maria at our embryo adoption agency. We said a prayer for our penguins that were lost.  At that point I did not know if I could take another transfer. My hips hurt so bad from the shots of the first two transfers, how could I do a third transfer?
Ok, my last little penguin, you were the only one left. I knew that since you were still alive that you were a fighter and you were going to be my stubborn one. We were going to butt heads in your toddler days and Daddy and you would butt heads in your teenage days. And we would love you anyway because you are our child. I was sure you were a red head little boy because red heads are very stubborn. Your transfer date would be just over thirteen months after you were put back on ice, and we had overcome all the obstacles people face on this journey. We were sure there would be no more obstacles. We are the champions and we would win and have one healthy baby in our arms. Unfortunately, we were so wrong. See Penguin, there this man: his name is Murphy and he has a law: If anything can go wrong, it will go wrong. My grandpa Fred was a big fan of Murphy and his law and I heard about this law many times growing up.  So now we have obstacles that even made the doctors are puzzled. 
Our last obstacle began in January 2014. Maria at our embryo adoption agency and I talked and we decided that since the clinic you were at did not do ultrasound for transfers that it would be best to move you to a clinic that did, and Daddy (Sean) agreed. So on January 21, 2014, I met with our new doctor, and went through everything to become a patient there. Then in March I called to see what we needed to do to be able to do a July transfer. They want me to re-do some yearly tests because it been a year since doing them. One test they had me do was a CMV test. CMV is a common virus that most people get in childhood, and the virus only active once but can stay active for 6 months. So in March I tested positive for the virus. We were told not to worry because we still had time until July. Then in May I tested positive again. I began to worry because I had to be on medication for almost two months before the transfer, so July transfer was postponed. I retested in July and the virus was still there so the September transfer that we so hopeful was now off. Our new plan was to retest in October and go from there because the virus is only active for 6 months and it should be gone by then. But in life, plans do not always work out. In the end of August I found out against all the odds in the world that I had gotten pregnant naturally: with triplets. We had been told we would never get pregnant on our own, let alone get pregnant with triplets. That had the doctor stumped. Sadly your three sisters (by adoption) hearts stopped beating at almost eight weeks. We did tests that confirmed they had chromosome disorders and that’s how we knew they were girls. But because I was pregnant and the CMV test kept coming up positive for CMV, my OB sent me to a specialist. He ran a detailed test that showed that the CMV had never been active and most likely it was in childhood that I had had CMV. There the other obstacle that the doctor was just stumped on: why did I test positive for CMV during a general test but with the detailed one I test negative?
We thought after the miscarriage we were all set to go forward. I thought that triplets’ purpose was to clear up the CMV and to prove that I can get pregnant: that is why we lost them so early. We are getting already to do the last transfer when we found out that, because of the triplets, I had scar tissue and would need surgery on my uterus to be able to do the transfer.  After I got through the surgery, everything was great and we are set to start medication for the last transfer.
I responded great to the medication to get my body ready for transfer just like I did the other two times. We saw the doctor on January 21, 2015: one year to the day of my first appointment at that clinic. The doctor checked my lining to make sure everything was good. So January 29th was set as the day of transfer in Seattle. We drove over the night and stayed at my parents’ house which is 45 minutes away from the clinic.  Dear Penguin, this part is just heart breaking. As we walked into the building that houses the clinic, the clinic called. I thought “This can’t be good.” They told us that you didn’t survive the thaw so there would be no transfer after all. And you were our stubborn one. Daddy (Sean) started to cry as soon as I told him the transfer was off and you did not survive. I’m so sorry. I tried to fight so hard for you and I did everything in my power I could do. 
We have been given the option by the agency to rematch with embryo but at this time we are not planning it. I am not sure if I have any more fight in me after the past year. We are, however trying to pursue private domestic adoption.  If anyone were to ask us if they should try embryo adoption, we would tell them yes, even with the outcomes that we had. We believe that every embryo deserves a chance at life and we did our very best to give that to you eight, and we love you. Because of you eight, I run an embryo adoption/donation support group on Facebook.  
So you eight penguins, I would like to ask you to please be my guardian angels and watch over me and Daddy. I sure hope those triplets are our guardian angels too. I like to think I have 11 angel babies watching over me.  I love you all and I’m so thankful to the family that let us adopt you.

13 Things That Would Be Nice For Friends and Family To Know AboutEmbryo Adoption/Donation



I thought it would be nice to make an informational list for supportive friends and family of someone going through embryo adoption/donation.
Before my husband and I became the adoptive parents to 8 precious embryos, I was a friend of someone going through embryo adoption/donation - she called it embryo adoption.   So I think it is important for friends and family to learn about embryo adoption themselves. You never know how it can change your life.
1.       First thing to know is what embryo adoption/donation is.  When  a couple or an individual has gone through  IVF ( In Vitro Fertilization), and they feel that their family is complete,  and they have embryos left over that are still frozen,  they can donate them to another couple or an individual. This process is called embryo adoption or embryo donation.
How can someone donate embryos or receive donated embryos?
a.       Someone can find a private match online through places like Miracle Waiting and NRFA.Org.  On sites like these, couples that are looking to donate their embryos can look at profiles of those who are looking for embryos. With private matches, people can talk back and forth and then can decide if it is a good fit or not. Some people even find match on Facebook groups. With a private match, it is most often called embryo donation.
b.      Some Fertility Clinics have a donor embryo program. Most often it is anonymous donation. The person receiving the embryos do not know much about the donors. They usually get health history, family background, education level and donor interests. With Clinics, it is most often called embryo donation.
c.       Then there is Agencies. We adopted our embryos from an agency. With an agency, most often you make a profile book. Then you match up with a donor couple that have similar likes, religion, and sometime even similar ethnicity. With agencies, it is called embryo adoption  rather than donation

There are 3 types of adoption.
d.Open - where the donor family and adoptive family talk to each other, may be Facebook friends, and sometimes they meet in person.
e.Semi-open - the adoptive family sends letters, pictures, and updates to the agency who then forward the info on to the donor family.
i.   Closed - not much info is shared and there is no communication between donor and recipient.
2.       Terminology on this is really hard and people can be very passionate on one term or another.  Some people that receive embryos call it embryo donation. This part really confused me at first because I thought embryo donation was the term you used if you are donating embryos. Others call it embryo adoption. I call it embryo adoption because that is the term I was first taught.
3.       Embryo are seen as being property so you cannot legally adopt embryos. Instead, the two parties write up a contract to change ownership of the property. Most often the donor and the recipient will work with an attorney to write up the contract. Once both parties agree, they both sign and then embryo ownership changes. If going thru the fertility clinic directly,  the clinic themselves have a contract for both parties to sign before transfer.
4.       Why would someone choose embryo adoption/donation?
 There are many reasons for this:
5. Genetic Disorders: My friend and her husband chose this path because they had a biological child that was born with a genetic disorder and has many health issues.
6. Infertility: Many couples choose embryo adoption/donation because they have infertility issues and are not able to get pregnant naturally. For my husband and I, this is why we chose embryo adoption and donation. We were told that my egg quality was too poor and we only had a 5% chance of getting pregnant with IVF using my eggs. 
          a. Miscarriages: This one can also go with infertility and Genetic Disorders. Some people have become pregnant naturally and then miscarried, most often before 12 weeks, because the baby or babies were not healthy. Most often it is a genetic disorder that does not allow the baby to go to term.
We have crossed over to this category because against all odds and being told my egg quality was too poor after 7 years of trying I got pregnant naturally with triplets, only to miscarry at 8 weeks because their hearts stopped beating.
iii.       Secondary Infertility- Some couples have been able to get pregnant and have a biological child or children, but then become infertile  and their family is not complete 
iv.       Single mother- this has been option for single people to have children, too.

7.         Why would someone choose embryo adoption/donation and not simply adopt a child or baby already born.  This can be a real tough question to answer - and believe me, I asked myself the same question when a friend first told me about it over coffee. I thought, why dont just do traditional adoption? But, luckily, I kept that thought to myself. Another friend of ours was talking about it a few months later when she told me our friend wanted to adopt.  I told her I knew she did and how she wanted to adopt. We both thought it was real weird.  You should not tell your friend how weird you think it is. They dont need to hear that. One thing to keep in mind is that you cannot understand another person's choices unless you walk in their path.

Here are some reasons my husband and I first chose embryo adoption/donation
iii.       Cost- A traditional adoption with an agency can cost anywhere from $30,000 to $40,000 or more.
8.        Want to go through a pregnancy: For us, this was the big factor because we want to go through the pregnancy. The genetics of the child did not matter to us.  And now, after being pregnant once, it is hard to let go of the feeling of wanting to be able to carry your child.
9.         Scammers: We are now on the domestic adoption route. We have a lawyer and are trying to find an expectant mother. We have a Facebook page and a blog page saying we are looking to adopt and we have had three people try to scam us so far.
10.     The wait- It can be a hard and long wait to adopt domestically. Our Lawyer has sent our profile to three birth/ expectant mothers and we have not been chosen and now our home study is about to expire and we have to spend more money to update our home study.
11.     There is always the route to adopt a child or newborn from the foster care system but that can be a hard route to go down. For us, this is not an option at all because we live in Washington State and I have a home daycare license. In Washington State, if you have a home daycare license you cannot be issued a license for foster care. Also, with foster care you have the risk of the child being returned back home to their family and they cannot be adopted.  And sometimes a foster child has a lot to handle that is just too hard for a couple.
12.     There is also the international adoption route. I personally do not know much about it, but we personally did not choose that route because we would like a baby out of the hospital.
So traditional adoption is not always an option for some people.
13.   Judgment: I will lay this out flat.  Someone doing embryo adoption/donation does not need to be judged. This not an easy road. Yes, there are the same risks as IVF.  As a matter a fact, in a way, the same steps are taken as IVF, meaning that an embryo transfer is involved. There is always the risk of the embryo not making the thaw or the embryo not implanting. Im well aware of those risks. We have done three transfers ourselves and with all three we never got a take home baby. Our first two transfers failed and our third transfer our last embryo never made the thaw so the transfer never happened. But this is also is an option that we needed to explore.
I grew up with a learning disability and was told by teachers in high school that I would never go to college.  I was told in college by professors that I would never graduate from college and I was just wasting my time.  I will tell you that this struggle with infertility and trying to have a child is the hardest thing I have ever gone through in my life. It makes my struggles though school a piece of cake. 
                So like I said, your friends or family members do not need to be judged. They need prayers, they need a hug or a smile or even a pint of Ben and Jerrys Ice Cream . They need to know that you are there to support them and not judge them.


Here is some other things that people on this journey thought that family and friends should know: 


 The biggest difference between traditional adoption and embryo donation?   With embryo donation you are given the possibility of the birth of a child.  Not guaranteed.  Additionally,  the carrying mom is the biological mother. New research is showing that baby and carrying mom share dna in the first trimester. Their is also a process called epigenetics.  this is where the carrying mom's dna highlights what the babys's characteristics will be!   That means the baby is uniquely theirs! Although the Dna begins from the donors, the embryo itself is still uniquely the child of the recipient. This process truly takes 3 people to make a baby.  A miracle! 

Will you be judged?  We have chosen not to share our journey will the public, however those closest to us thru our 11yr infertility battle know.  After explaining what it actually is,  we found them to be very supportive.  My daughter is soon to be born.  I've already read her books in utero about embryo donation.  I never want there to be a time she doesn't know. We are so grateful for our selfless donors who began her first 53-58 cells of life. We believe every person should know where they come from.  Its a part of her birth story that we feel is truly the biggest miracle.    -C.Muntz